Wednesday, November 16, 2011


Today was a pretty good day for Brea.  After her tube was removed at lunch time, things were pretty quiet.  She didn't seem to progress much, but had no major setbacks (always a good thing).  The afternoon consisted of Brea being quite uncomfortable (the gas in her stomach playing a big role).  She was also asking for water, which we were not allowed to give.  The doctors gave her the all clear for having a drink of water at 11pm, which she enjoyed very much. 

Brea doesn't seem to have got much quality rest today.  She was too uncomfortable all afternoon and even now is whimpering as she lies in her bed.  A couple of times I feel like she has finally fallen asleep, only to be woken up by the doctors checking various things.   

They were unable to make any progress with the fever using tylenol, so they started a course of antibiotics about 6 hours ago.  Her temperature is now back to the normal range.

A couple of you have asked us whether they were able to connect the inferior vena cava to the pulmonary artery outside the heart.  The answer is yes.  Dr. Q was able to place a conduit outside of the heart as he wanted to do.

We are so grateful for all of your prayers.

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